Welcome to our childrens website!

Welcome to our childrens website!

Jakob & Ava
5-12-04 & 9-14-07 05:40pm & 7:23am 9lbs. 1oz. & 9lbs.

Last Updated:
Nov 21, 2009

Home Pictures Stories Family Guestbook

pretty tree!

I love this pic

eating black olives

more pictures...

Rest in peace my dear son, Jakob Brian Bolyer,
May 12th, 2004- Feb 24th, 2009

Lilypie Angel and Memorial tickers

Welcome to our kids website.

Jakob and Ava

A little about our children............. Jakob had a rare brain disorder called Joubert Syndrome. It is genetic. Read below to find out more about his syndrome. Jakob loved school very much, and his favorite show was Yo Gabba Gabba! We are very sad to say, he passed away on Feb. 24th, 2009. He had been having seizures for some time and we believe that is what caused his dealth. We will forever remember him and love him dearly.

Ava loves going new places and seeing new things. She also loves playing with her toys. She enjoys books. She loves her kitty Obama. She loves playing outside the best, bath time, and brushing her teeth.

Lilypie Third Birthday tickers

Any question feel free to ask me at jessjill28@netzero.net More about Joubert Syndrome:What is Joubert Syndrome? Joubert Syndrome is a rare, genetic disorder that affects the area of the brain that controls balance and coordination. The disorder is characterized by agenesis (absence) or hypoplasia (underdeveloped) of the part of the brain called the cerebellar vermis and a malformed brain stem. The most common features of the disorder include ataxia (lack of muscle control), an abnormal breathing pattern called hypernea, sleep apnea, abnormal eye and tongue movements, and hypotonia. Other malformations such as extra fingers and toes, cleft lip or palate, tongue abnormalities, and seizures may also occur. Want to help the Joubert Syndrome Foundation?They have lots of fundrasiers going on please check out their site and help our foundation! http://www.jsfrcd.org/HowYouCanHelp.asp

Jakob dancing with Brobee and sister! 4.5 years old Nov 2008

A Video of Ava playing the drums 17 months old

Stories

11-21-09 Well lots has been going on lately. We stay very busy most the time. All of us were sick for a good week and it was awful. I am so glad to be feeling better now. Brian and I went to New Orleans and it was such a good time. We went to voodoo fest a big 3 day concert. Ava is growing big and we made h...

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10-18-09 Brian and me had our 5 year anniversary last Tuesday. Brian got me a blackberry!! I couldn't believe it. We weren't suppose to be spending much so I didn't get him anything but some candy and a card. I wanted to get him a watch but we didn't have the money. Maybe I can surprise him with it later on.&...

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10-10-09 Well I started a new job this past week. I really like it. I am just a file clerk but its at a place that does home healthcare and therapy for seniors. I really like that its in the field of work I will actually be doing when I get done with school. Its way better then the pizza place was.&...

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9-22-09 We had Ava's bday party last weekend. She had a great time. We had two girls come and play with her and did a princess theme. She got a lot of new toys. I am clearing out some of the old ones to make new for new ones. She also got clothes from her grammer Jen, Grandma Denise, and great grandma Ruth. ...

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9-15-09 Yesterday was my baby girls 2nd birthday! I just can't believe she is getting so old so fast. We just got back from Fl yesterday too. The wedding was great and the trip was so much fun. Our condo was so nice!! I loved it. I wish I could leave close to the beach cause I really love it there. ...

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9-4-09 I can't believe my little girl is going to be 2 very soon. She is getting so big and she is in to everything. She is starting to really like coloring. I have some good news. I got a job a few days ago. My first day is today. I am working at the pizza place in Coushatta called Speedys. ...

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Guestbook

Ava looked so sweet. At first I thought her hair was cut short, but it was just pulled back...lol It feels like I haven't talked to you guys in awhile! We'll have to chat soon!
-Kelli, Danny and Lily Nov 21 2009

Happy Anniversary guys! Five years is a milestone congratulations!
-Danny, Kelli and Lily Oct 18 2009

Hey! I feel like I haven't talked to you guys in forever! Hope all is well! Ava is growing up so fast, she looks so tall already! Loves!
-Kelli, Danny and Lily Sep 29 2009

If you look at the 1st year pic.s and then the new ones she looks so diffrent and i thought that she couldn't get any cutier!!
-viktoria evans Sep 09 2009

I hope we can Skype soon! Dad got a webcam down at the shop, so we are going to have to plan a day soon to talk so the girls can see each other! Hope the job works out! TTYS
-Kelli Sep 05 2009

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