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Stories
Hello, my name is Madison Grace Burleau. I will be 4 years old on July 2nd,2009. I was diagnosed with Angelman Syndrome when I was 18 months. My parents new early on that there was something very special about me. Angelman Syndrome is a relatively rare genetic disorder that causes a variety of neurological problems, including developmental delay,...
Sept 20th 2008,
Hi Everyone! Long time no write! Madison is doing very well these days. Some seizures here and there but all in all she is very healthy.
Madison started back to preschool on Sept 8
th, 2008. She is doing so well there. What a difference going to school this year from last. No crying fits at all. None ...
Madie started lite gait therapy today and will be doing intense therapy over the next three weeks. We are hoping this will teach her to use her legs and weightbear. Along with being able to put two and two together on how to take a step.
Thanks to all those who attended Madie's tournament this year! We are so honoured you came out in support of her:)
Madison Grace Angelman Syndrome Open: Saturday, June 21
st, 2008
Where:
Metcalfe Golf and Country Club, 1956 8
th Line Road, Metcalfe, ON K0A 2P0
When:
Saturday, June 21
st, 2008. Shot Gun Start at 1:00pm
Cost:
The charge per player will be $110.00 ...
February 23rd, 2008.
Hello everyone! Madison has received her walker, but we had to send it back for a bigger frame as she is growing so fast- the small frame would not have lasted long enough. She is using the walker at her preschool Wed- Fri. And we are anxiously awaiting her new one to come back. Madie, as you know had a bout of seizures. W...
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Pictures
Hi Burleau Family!
Sarah, I read the article in the community paper about Madie and the tournament. What a great idea and a great way to raise funds for your daughter. She is absolutely precious!
I wish you all the best.
-Amy Evans
Hi, When I opened my door this morning I was greeted by a ray of sunshine, yet it drizzling outside! Sarah, you and Madison brightened the whole day as I viewed your picture on my porch in the "Weekly Journal". The joy both of you are experiencing in this picture is so beautiful! I have a daughter with Down Syndrome and even though it isn't the...
-Darlene Fast
What a beautiful girl!! My daughter Jaelee is deletion positive. Jaelee is 6 yrs old. She is the youngest of three girls. Her sisters are 16 and 9. She is everyones little princess. Best of wishes on your new addition. Take care from Helen,GA.
-Tammy ,mommy to Jaelee deletion positvie
What an absoluely sunning beauty you have there! And congratulations on your newest addition :)
Pamela, Mommy to Joey, UBE3A
-Pamela Libralesso
Great web site. Now I can check up on you at any time. She is a sweet heart.
-Laurie Millar, Renfrew, Ontario
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