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What a cutie! Just wondering if this is the same little lady that went to a special school in the East County...my son currently goes there. Karen was his teacher until he turned 3. His teacher now is Lenore.
Feel free to contact me. mommysbudbud@yahoo.com
Dawn (mom to a special 3 1/2 yrs old w/Pfeiffer Syndrome)
Geneticist: Dr. Jones
Cranio Team: Los Angeles
-Dawn P.
Delaney is beautiful! I would love to be able to correspond with you through e-mail as I have some questions regarding hypertelorism. If you are willing my e-mail is cknorr2@verizon.net
I am an adoptive mom to two cl/cp daughters and I am advocating for a very special girl on my adoption agencies waiting child list who has cl/cp, hypertelorism, and a sacroiliac lump(repaired).
Thank you for your time and consideration.
-Cheri
Beautiful smile that shines through all she has been through. Amazing! Would love to talk more with you. dolphinsdive@yahoo.com My little guy's doctors are talking about surgery for his hypertelorism.
Gina
-Gina
Hello Delaney and Family =)
I'm a babyhomepages Mom that has been stopping by for the past 2 years to watch you and your family grow. I'm so impressed with you Delaney. What a trooper you are. You rocked through surgery and recovery. I'm very proud of your parents too. What strength they have, as I know how frightening it can be to have a child go through surgery. I'll continue to stop by from time to time and keep your family in my prayers. BTW - Happy Belated Birthday!
-bhp/babytrope
Wow!! What a differance... you were beautiful before but now....Daddy do you need a good piece of steel to fight them off with?
I'm very proud of you, Delaney for being such a brave girl for all the surgeries-- you've done great! keep up the good work and being such a big girl for your Mommy and Daddy. All the Household is still praying for you and hoping everything heals quick and well, we're all there beside you if only in our thoughts and hearts.
Love, Uncle Bear
-Bear/Mathghamhain/Robert
Hi Kristen and Delaney! It's Joy... glad to hear that the surgery went well! I'll be keeping you in my prayers. Love, Joy
-Joy Fahrenkrog
Hi, Delaney and family,
I just found your way cool website, while looking up hypertolerism. I see our little ones have a lot in common. My son Jonah was born Feb. 13, 2007. With Diaphragmatic Hernia (stomach, intestines and spleen in his chest) Hypertolerism, Absent corpus collosum, cleft pallet, craniosynestosis of the right side, undescended testes, and major acid reflux. He was on Ecmo for 16 days 2 days after birth and we were told 3 times that we should take him off the vent. He had his hernia surgery and spent 109 days in the NICU with feeding and breathing issues. We came home for 18 days and had to go back to the hospital for 3 weeks for his nissen/g-tube surgery for the reflux, and now we're back home, all is going good, Jonah is now only on oxygen during the night and the feeding is getting better, but he has to be on a continuous drip. The geneticist thinks he has Donnai Barrow syndrome (we dont), did they mention that at all to you? We have set up a carepage at www.carepages.com and his page name is jonahcarepage we have pictures posted if you wanted to check it out. It was just nice to find someone else with similar issues.
-Seree'Jo Schmidt
HI kristen and Jason - Just recieved Delaney's cute easter picture - Love the dress your Grandma made her - Your Mom said it's the last one that your Grandma will sew. That's sad, She's such a wonderful seamstress. Hi and love to all, Love Aunt Wendy
-Wendy Wright
Wonderful website! Delaney is beautiful! We'd love to meet you in person at the 2006 North American Craniofacial Family Conference (NACFC) in Las Vegas!
http://www.cleftadvocate.org/nacfc.html
Come and meet families from all over the country!
Debbie Oliver
debbie@cleftadvocate.org
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Hello little Delaney(and family),
I'm just another Babyhomepages mommy and I like to go looking around at all of the other beautiful children in the world. It helps me to put my chaotic days in perspective when I see their smiling faces~all so different but full of the same wonder and love. I'll check back to see Delaney is doing from time to time=) Until then God bless your lovely, little family!!
- Heather Purcell babyhomepages.net/gavinator
Hi from Aunt Jean in Morgan Hill.
Just refound the card with the website address.
Delaney is doing great; hope Mom and Dad are hanging in there without too much stress too!
Hope to see the kidlet early in 2006 while visiting my former room mate from the 60's!
Give little one a hug and kiss!
- Jean Rickard
Hi there, love the website! Your baby is beautiful! I had a son that had a cleft lip and he had his surgery when he was 3 months old. If you want to visit us, look up derekandtylerrussell
- Tracy Russell
WHat a beautiful child! Jason I always knew you had good genes in you... love you "sis" - Kathlyn
- Kati Mavis
Hi, Just now got the time to look at this webpage. I hope you can keep up with this. I love seeing her grow. Gary and I hope you like your new place. We think of you often.
Love Arizona MOM
- Janet Young
Wow, Delany! Sounds like you went through a lot to be where you are today! Congratulations to you and your parents!
I know you will have a bountiful life; full of love! Your parents are fantastic people!
Long Lost Friend,
- Robert Dickinson
Hey Jason & Kristen,
This is Jonette. I just had a chance to look at the pictures she is precious. Jason, she has your eyes. Now that I know the website I will be looking for updated pictures periodically. Take Care.
Love from Georgia,
Jonette & TC.
- TC & Jonette
HI kristen and Jason. This is my first chance to take a look at your cute website for Dalaney. Hope you are enjoying the Holidays and Merry Christmas - We love you all - Love Aunt Wendy, Uncle Brad, Heather and Alex
- Aunt Wendy
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