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And the trouble I find is that the trouble finds me...
Talk of the Town - Jack johnson
June 6 - Roseie has a cough this morning. A nasty, croupy, scary cough. How in the world am I going to keep her away from Ralphie? His surgery is just a little over two weeks away!
I wish I had a "safe room" for him like little Parker at
www.prayingforparker.com
. This sweet child has pulmonary hypertension and Down Syndrome, just like Ralphie, among other things. They try to keep him in a special room where anyone who comes in to see his has hands washed and sanitized.
Say a prayer for Parker today, if you would. He has been through major surgery lately and his family is facing financial ruin from the TREMENDOUS bills. They are not able to find help because they are not poor enough...yet. They made the mistake of trying to pay their bills.
Each year their hospital raises funds through the Children's Miracle Network. We are talking BIG money here! And as part of their promo they talk about how your ability to pay makes no difference to them. Yet they get collection notices often. Turns out the funds are reserved for those with no insurance and people from other countries. It kind of makes you feel like a dope for being responsible enough to carry health insurance.
June 2 - Have you checked out Ralph's new page,
http://ralphcrew.blogspot.com/
? I've got some new pictures over
there...go
take a peek!
I took Ralph to have some blood drawn today. He needs his electrolytes checked again now that he is fully recovered from the dehydration of a couple of weeks ago. His sodium levels were dangerously high at that time. Now we need to know if he should restart his sodium supplement.
I also wanted the doctor to see Ralph because his hands are peeling. Sheets of skin have been coming off for a few days now. Turns out that it may be an after effect of the dehydration or possibly another type of infection. Not terribly worrisome. At least his lungs are still clear as a bell!
Oh, the milestone...Ralph finally tips the scale at 20 lbs.!!! Ok, he had on a diaper...but I say it counts. I'm sure the people in the waiting room heard me yell YES!! when I saw the scale read 20.0 right on the nose.
His heart cath is in three short weeks. A lot is happening between now and then so I'm sure the time will fly. Richard will be leaving and returning from England. Chipper will be leaving and returning from camp. Baseball games gallore! James will be in and out of town. June 24 sounded like a long way off last month...now it's just right around the corner.
God willing, no more delays.
Here are a couple of other recent pictures of some of the kids:
Ralphie is obviously still not feeling too wonderful. He would have ordinarily demolished this little cake!
Leroy is getting ready to play in the rain. He promised to stay out of the mud, yeah right! We don't keep raincoats around so Chipper's windbreaker will have to do.
Here is Rose in her new bathing suit with her birthday cake. Not too bad for a 10 minute decorating job. Doesn't she look pretty in blue?
Richard with his baseball team. He is getting more handsome every day!
Check out my new friends below at Rhett's Journey. This darling little guy has been dealt many of the same cards as Ralphie...
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